Wednesday, February 25, 2009

Team Meeting!

we found out this morning that we get a team meeting on Friday for Raef. that means that our neonatologist, any specialist involved in Raef's care, and Reid and myself get together to discuss Raef's condition, and the plan for his care.

they tried to make him poop again today and were unsuccessful. a gastroenterologist stopped by today when i was out of the room to check on him, so hopefully he'll be at the meeting as well. i'm looking forward to this collaborative effort mostly because i have no idea of what the future holds for our son.

we've gotten in touch with the Prune Belly Syndrome Network to try to connect with parents of children with the syndrome. so far, it seems like a great group of people who truly want to help each other by providing support and information about their experiences.

Mary B. took me over to Peoria today, it was nice to see her after almost two weeks! she's done so much for our family; we don't know where we'd be without her!

on a totally different note, we received our phone bill for February, and were stunned at how much it was! we may be a little less available to people on the phone, so please don't take offense if we're not calling as much as we have been as of late. we simply cannot afford it!

also, our landlord from the apartment we were renting before we bought our house has changed her story, and we're fretting about how to get out of our lease. she was very vague with Reid when he initially called her back in January to see if we could terminate our lease early. she gave him three options that all seemed to contradict each other. of course, this is when we found out that Raef was going to have a difficult start to his life.

needless to say, i sent her a ready, willing, and capable person to sublet our apartment for the rest of our lease agreement and she scared the poor girl away by saying that she wanted to raise the rent and lease the apartment for a year. i just don't understand how to effectively deal with someone who lies so consistently. i'm not equipped to handle this right now, and we can't afford to keep paying rent and our mortgage. i'm so frustrated and infuriated.

needless to say, i've also been here at the hospital all day, and my throat has started to hurt. i need to go home and get some rest so that i can be well for my son.

2 comments:

  1. Kara...I am so sorry that you have to be dealing with that additional financial garbage (phone bill, apartment lease scenario) on top of everything going on with Raef. How unbelievably frustrating. I hope things get better. I look forward to hearing about the meeting on Friday and hope all goes well.
    It should go without saying by now ;), but you are all in our prayers!

    Rachel

    ReplyDelete