after a day of great news yesterday, we received some disheartening information tonight. Raef has officially been diagnosed with Prune Belly Syndrome as far as we can tell. prune belly can mean a whole slew of problems for a baby, and i haven't had much of a chance to research the condition yet so i'm not going to speculate just yet. Raef's doctor is going to call in some specialists in the next few days to assess Raef's situation further.
the doctor, who is a really great doctor, said today that he was very hopeful the last couple of days, but now he just doesn't know. i'm not a fan of that language, but i'm sure that it's honest and he seems genuinely concerned for Raef's condition. he told us that in his 15 years of practicing neonatal medicine he's only seen a couple dozen cases of prune belly syndrome, and that the kids with prune belly usually have a very difficult time.
i want to let this go for tonight. i want to be able to bring the sunshine in with me tomorrow. i pray for some peace tonight so that we can be refreshed in the morning. i pray for god to take his healing hands and put them on our little angel's belly.
No words... just prayers
ReplyDeleteLove,
Aunt Diane